I saw a post saying that stimulants for ADHD are life saving medications because they reduce car crashes and while stimulants are very important for people with ADHD they just... aren't life saving.
some medications you will die without. stimulants for ADHD are not on that list.
when other disabled people talk about life saving medication we don't just mean "very important" we mean "life saving"
I would die of organ failure caused by inflammation from lupus if I didn't have my biologic. diabetics would die of diabetic ketoacidosis without insulin. people with asthma would suffocate to death without their inhalers. that is what it means to have a life saving medication.
you can emphasize the importance of a medication without comparing it to truly life saving medications. it just comes across really insensitive when you compare lower risk of car crashes to guaranteed death without a medication
like, the shortage of stimulants is absolutely detrimental to people with ADHD but it's not comparable to a shortage of a life saving medication. without a stimulant people with ADHD would still live, without insulin diabetics would die. when stimulant prices are inflated and people can't access them it is hard but it does not equate to death. when people with life threatening autoimmune diseases can't afford their medication it does equate to death.
if you want to talk about the importance of stimulants for people with ADHD and the negative effects of the shortage that's great! but refer to the medication correctly- it's life changing, it's not life saving
happy disability pride month to those with conditions no one talks about, online or in general:
multiple sclerosis (me lol)
marfans
cerebral palsy
bells palsy
hidradenitis suppurativa
cauda equina syndrome
mixed connective tissue disorder
hyperadrenergic pots
non hypermobile eds types
stickler syndrome
mitochondrial disease
cystic fibrosis
sickle cell disease
myasthenia gravis
post-cholecystectomy syndrome
SWAN (syndromes without a name)
...just to name a few. i see you and you deserve awareness and understanding.
this list is non exhaustive, rb with other conditions you want to see represented!!
[ID: a post banner with dark red background and medium grey bolded text in the center. it reads āThis post is about physical disabilities, do not derail.ā On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]
Hi friends!
You may have heard of IZ Adaptive clothing, which boasts wheelchair-friendly trousers, open-back shirts, and magnetic closures among others! (Image IDs in alt text)
They're an investment, not gonna lie, but if you're going to buy, please consider using my affiliate link. You can enter code IZ10OFF for 10% off your first purchase.
Thanks friends! Stay hydrated!
My husband and I became catechumens in the EOC for which we are incredibly grateful. Hereās my dilemma though.
I canāt attend Divine Liturgy because of my chronic illness. The priest is very understanding of this and is genuinely trying to accommodate us the best anyone can.
He wants us to get plugged into the community despite my limitations and is thinking of safe ways for us to do so, since I am immunocompromised and my husband (who has lupus) is also facing potential new health concerns. Though we want community as well, I am having debilitating anxiety around it.
My illness is so unpredictable. I have good days and bad days. Some days, I need my wheelchair or another mobility aid (which I donāt like using because I donāt like being vulnerable but I NEED to use them for safety and/or energy preservation). But other days, I do not need anything. Chronic illness has SO MANY facets and triggers and layers of unpredictability! In the past, many people (mostly people from our old church) have accused me of faking my disability when theyāve seen me on a good day, or when theyāve seen me without a mobility aid after needing one a previous day. Theyāve told me Iām making excuses, that Iām faking for attention, etc.
No one but my husband ever sees the ādetailsā of my chronic illness, after all. They donāt see me when Iām curled up all night on the bathroom floor bc of gastroparesis agonizing and crying for it all to end, or being SO extremely fatigued due to POTS that I canāt move a limb out of bed. They didnāt see me when I fell that morning which warranted me using my rollator for the rest of the day to prevent another concussion. They donāt see the painful internal struggle of trying to walk in the summer heat without support. Anyone with a chronic illness can relate!
People from my last church (not an OC) said hurtful things and more and told me Iām going to hell for a number of reasons- because I donāt have kids, because I donāt go to church on Sundays etc. i had poured my soul into that parish. Then, everyone left. We felt abandoned.
This served as the catalyst to question our faith -tradition, theology, and everything- and ultimately, everything came together to lead us to Orthodoxy which is a HUGE blessing! But Iām just SO EMOTIONAL because though Iām more than ready to embrace the fullness of faith and the Sacraments when the time comes, I donāt think I can ever be a part of a community.
Itās exhausting to have to try to explain the ins- and- outs of my illness to new people, many of whom wouldnāt even believe me. And I just donāt want to get hurt again. I know itās wrong of me to assume that every new person I meet will eventually judge me and leave, but thatās just what weāve consistently experienced. Thatās all we know. I have a small circle of friends, and Iāve known all of them for many years - those friendships have stood the test of time and Iām grateful for them.
I honestly donāt know why Iām making this dumb post. Iām not trying to throw myself a pity party, I just need a place to vent and let it all out. Iām also just in a totally bad headspace right now and my anxiety levels overall are insanely high with my husband preparing for a high stakes surgery in a few days and me having side effects from the rescue medication I had to take last night. But if youāre reading this and have any advice, please tell me. And please pray for us. Please pray for peace and healing in our lives, spiritually, physically, and emotionally. Please pray that i can stop myself from spiraling into depression - I can feel it happening. I feel like a burden to my husband and the few friends I have and the devil is probably angry that I made the decision to become a catechumen. Please pray that we can find joy this Pascha, even though we are separated from the Church, knowing that we rejoice in Jesusās resurrection. The pain runs deep but His love runs deeper.
Thank you. š¤
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned downĀ in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low IncomeĀ Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
Trump accidentally does a good thing.
Though I'm not sure if this will actually do anything. Sometimes I feel like his EOs are like Michael Scott declaring bankruptcy. He doesn't seem to understand what he actually has power over.
And I wonder if he knew "woke" disability activists were asking for this if he would have changed his view to spite them.
In any case, banning straws will not save the world. A tiny drop in a vast bucket of plastic waste. Fishing nets cause orders of magnitude more damage to sea life. This was mostly a PR move that some thought would be an "easy win" because they had a photo of a turtle with a straw up its nose.
Single use plastics are absolutely a huge issue. I don't like having plastic in my brain as much as the next person. But an item by item ban is a Sisyphean approach and, in this case, hurts disabled folks more than it helps turtles.
Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!
This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.
This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!
The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!
A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.
Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)
(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)
When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane, then the good leg, and THEN the leg that needs help.
Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.
In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.
Now we come to a very common mistake I see... Using fashion canes for medical use!
(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)
The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!
Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.
The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!
This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!
However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.
Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)
Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.
Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)
(my canes, for reference)
If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!
When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!
For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.
When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)
When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)
That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!
Happy disability pride month! Go forth and make more characters use canes!!!
"gnc straight man being called a faggot doesn't experience homophobia" what the fuck are you talking about. there's absolutely no logic in anything like that. we have kids who literally killed themselves because of homophobic abuse in schools and you would dare to tell them it isn't homophobia that killed them because they weren't actually gay? insane. and so fucking cruel
Dear game developers:Ā
Make your games more accessible by
Allowing Button remapping
Supporting multiple kinds of controllers
Supporting multiple types of inputs for when solving puzzles or clues
Match the color and or pattern puzzle
Follow the sound and controller vibration to find the mcguffin
Allow for zooming in and out if youāre doing any kind ofĀ āpattern alignmentā puzzle.Ā
Subtitles on everything, for fuckās sake
If your motion/camera thingās instructions start withĀ āstand up andā¦.ā, rethink your design.
Allow for adjusting the field of view
Aim assist.
If someone is struggling with a puzzle or task, start offering tool tips and hints on screen
Remember that the goal is not to have the player play the game like you would. The goal is for the gamer to have fun and experience the game and art youāve spent so much time and energy to create in a way that brings them joy.
Removing and avoiding harmful tropes around disability - physical or otherwise.
74 posts