apparently people are now purchasing thick water to make slimes with because of a trend on tiktok
thick water is for disabled people who can’t swallow properly. stores usually have extremely limited supplies of it.
please don’t buy thick water for fun or to make slime with. it’s literally the only way some disabled people can drink anything. It’s not a fucking toy
can we have a conversation about how abysmal the state of "handicapped" parking spaces are in some places? ive been to two separate places in the last week that labeled a normal spot as an accessible one and just painted it blue. ive been to hospitals and doctors offices that had like 3 spots total. sometimes they're even more inconvenient than the regular spots because they were put somewhere stupid just to get away with the bare minimum. this sucks
We need shittable cities (actively maintained public restrooms).
A disabled woman fell on the bus I'm on and I'm literally the only one who listened to her and didn't try and pull her up when she said she wanted to sit for a second, or crowd her saying what she should do next.
Can we actually listen to disabled people maybe? This is exhausting.
You are not a creep if you find yourself sexy with your disability aids. full stop. If your partner is disabled, you are not fetishizing them if you find them sexy when they're in their wheelchair, or wearing their diaper, or have braces on, etc.
Disabled people are allowed to feel sexy and people are allowed to find them sexy. People with facial/limb differences and other physical differences are allowed to feel sexy and people are allowed to be attracted to them.
The problem comes from lack of consent and dehumanization. Expecting all disabled people to fit your sexual fantasy and sexualizing them openly without their consent (i.e. posting/reblogging normal pictures of a disabled person on your fetish blog or sexually harassing a disabled stranger) is fetishization and horrible. Asking us how we have sex or taking secret photos of us to jack off to later is creepy and crossing the boundry into dehumanizing fetishization. Seeing us and our sexuality as an oddity or a funny joke is not okay.
Reminder, sex toys were first and foremost created by and for disabled people. We have always been having sex and have always been seen as attractive by our admirers, without them fetishizing us. Having sex with a consenting disabled person isnt rape, and yes it is possible for us to eagerly consent! While some disabilities make it hard to consent, that isn't true for all of us.
We get horny, we have sex, we jack off, we wear sexy clothes and show off our bodies. We aren't freak shows for abled peoples amusement nor objects for fetishization. We aren't poor innocent virgins who don't know what sex is, we are a diverse and beautiful community all connected by our disabilities.
(post is edited for terminology, please rb this version instead)
why isn't there much info about coathanger pain with POTS?? or at least why is this not more common knowledge? i don't think i've ever seen anyone talking about this. every time i've asked about it (+other POTS symptoms it comes with in my case) in chronic illness spaces people have suggested everything from fibro, MCAS, a CFS leak, a herniated disc, CCI, etc. but nobody ever said "coathanger pain."
but dysautonomia international posted a silly little graphic on their instagram and now i have my answers to why i was having a ton of symptoms that did suggest a herniated disc but there were no signs of disc herniation upon getting an MRI and for some reason it was triggered by working morning shift/having to be upright for a long time in the mornings. i would get excruciating, searing pain that feels pike a knife has been shoved into the base of my neck and the whole of my upper back would have this icy burning sensation. accompanied by me losing the ability to think straight, losing my coordination, and slurring my speech. i left work crying one morning because of how much pain i was in before i eventually came to the conclusion i couldn't do morning shifts.
that's coathanger pain. my spine is okay (i think...for now, anyway.) according to The Stuff they don't know what causes coathanger pain necessarily but they theorize it has to do with reduced blood flow to those areas of the body (which would track since POTS tends to involve blood pooling in the extremities and such.) it's also not exclusive to POTS and is associated with dysautonomia or orthostatic intolerance in general i think.
One example of the power of obtaining the autonomic history is the Coat Hanger Phenomenon. In people who have neurogenic orthostatic hypotension or orthostatic intolerance, they can complain of pain, or like a charley horse kind of sensation, in the back of the neck and shoulder areas in the distribution that’s like a coat hanger. And it goes away when the person is lying down. That’s an important symptom. And the way I explain it is that the muscles that control your head are tonically active, otherwise your head be falling down all the time. Tonically active. That means they’re using up oxygenated blood all the time. Well suppose you’re in a critical situation where there’s a drop in blood flow at the delivery of oxygenated blood to the head. In that situation these muscles are not getting enough oxygenated blood. They’re tonically active, so they’re producing lactic acid and you get a charley horse, just like you’d have a cramp anywhere else. It’s a skeletal muscle thing. So, I think when somebody complains of Coat Hanger Phenomenon, that’s a very important sign or symptom. And that is not invented. That’s a real phenomenon. It points to ischemia to the skeletal muscle holding your head up.
(Dr. Goldstein, The Dysautonomia Project)
worsening cognitive dysfunction, slurred speech, and worsening coordination because blood's not getting to my brain. bordering on emergency-room-level pain in my upper back and neck because not enough blood is getting to those parts of my body. got it.
anyway, i legit have NEVER seen this discussed until recently and i thought i should share.
It's the last weekend of data collection for my thesis survey on disability, so if you're 18 or older and identify as disabled or partially-disabled (even if you live outside the U.S.) I'd love to hear from you! The survey is about how social friction is perceived in interactions between disabled and able-bodied people, and takes about 15 minutes to complete. It's also completely anonymous.
As an incentive for participation, there's an optional raffle that you can participate in for the chance to win an Amazon gift card (yep, even if you live outside the U.S.).
"Let Me Get That For You": Analyzing Frictional Situations in a Disability Context (via Google Forms)
Big thanks to everyone who has already completed the survey, and if you fall into that group, you don't need to take it again.
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This research survey has received approval (IRB number 2025-037) from Delta State's Institutional Review Board.
every time anyone talks about liberation for the intellectually disabled in any real material way (i.e. creating plain-language educational resources accessible to adults reading on a first-grade level, detangling literacy from basic requirements to participate in society, destigmatizing inability to benefit from pedagogy, criticizing the construct of financial literacy as a necessary skill, etc etc etc), some chud comes along calling it "anti-intellectualism" and blabbing about how you're a morally inferior person if you only read middle-grade novels for fun, i'm so tired and we are never making it out
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
I hope this helps anyone who's trying to design their oc using a wheelchair, it's not a complete guide but I tried my best! deffo do more research if you're writing them as a character
"ai is making it so everyone can make art" Everyone can make art dipshit it came free with your fucking humanity
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